I've been wanting to make this video for a while. As I sat down this morning, with a song in mind, and a ton of pictures to go through - I realized that I had no pictures from when Henry was in the hospital. I had to ask my mom to send me some. As I was going through her pics, I bawled. I hadn't taken any pics. I was in shock and denial. I was completely unprepared.
As I began sifting through the hundreds of pictures, the feelings seem to be imprinted on some more than others. I remember what I was thinking and how I was feeling when they were taken.
I finished up my selection and tried to import the song that I wanted to use... and due to freaking restrictions, it wouldn't work. So, I spent another hour trying to trim down something that I could use.
I am not great at editing audio. So I apologize in advance...
But this is a series of pictures from Henry's first hours to just a week ago. The first few are hard for me to look at, but I think they are a part of his story.
Showing posts with label Kim Kardashian. Show all posts
Showing posts with label Kim Kardashian. Show all posts
Tuesday, December 14, 2010
Monday, December 6, 2010
Scheduling Surgery!
Dr. Wadie confirmed our suspicions. After trying to find the right floor, and the right office, we sat in Dr. Wadies office and discussed both procedures, and how Henry will need both. We were informed that Henry's reflux could get worse if we do the Gtube. So the nissan fundaplication will be an eventual need... there are risks to the 'wrap' as he called it. Because the stitching is also attached to the stomach muscles and diaphram, it's possible for the stitches to be dislodged and may need an eventual re-evaluation... He said that we don't <i>have</i> to do the 'wrap' but it's very likely that he will need it.
So, my opinion... the odds of Henry's stitches being dislodged are lower than the eventual need for the 'wrap'... Do the wrap with the Gtube, so that we don't have to go back and do another procedure. If he needs the stitches re-stitched, we'll deal with it then...
Henry has gained weight. Every time we take Henry to an appointment, he needs to be weighted. Have you ever weighed a child that has no muscle control? Well, I have to hold him on the scale, then pass him off to someone so that we can get MY weight and subtract it, to get his. It seems petty, but I hate the scale, and an already stressful appointment, somehow gets amped when everyone in the world gets to see the scale flash an extraordinary amount of pounds on the digital scale... (I'm totally having a pity party!) But, to change the subject, Henry's eating has been more concentrated and successful... We haven't tried any solid or pureed food for nearly two months, and he hasn't thrown up but a couple of times, in those months! So thank goodness for small rewards!
After this surgery we meet with a nutrition specialist, and an OT to discuss a 'feeding plan'. We'll need to coordinate tube feedings with oral exercises, so that there is an eventual removal of the tube, if at all possible. Surgery is just one step in this process, but there is hope and we're aiming high.
Henry will be fitted for leg braces the day before his surgery. He'll probably have the braces, his tube and the final fitting of his wheelchair before the end of the year.
It's almost overwhelming. Almost. One thing at a time. Distractions from life, and the other children - keep my head from obsessing and ruminating on the ins and outs of Henry's issues. Lewis is nearly crawling, Anastasia starts basketball - the quad team, and Zane want to explore Homeschooling options. They'll keep me busy!
So, my opinion... the odds of Henry's stitches being dislodged are lower than the eventual need for the 'wrap'... Do the wrap with the Gtube, so that we don't have to go back and do another procedure. If he needs the stitches re-stitched, we'll deal with it then...
Henry has gained weight. Every time we take Henry to an appointment, he needs to be weighted. Have you ever weighed a child that has no muscle control? Well, I have to hold him on the scale, then pass him off to someone so that we can get MY weight and subtract it, to get his. It seems petty, but I hate the scale, and an already stressful appointment, somehow gets amped when everyone in the world gets to see the scale flash an extraordinary amount of pounds on the digital scale... (I'm totally having a pity party!) But, to change the subject, Henry's eating has been more concentrated and successful... We haven't tried any solid or pureed food for nearly two months, and he hasn't thrown up but a couple of times, in those months! So thank goodness for small rewards!
After this surgery we meet with a nutrition specialist, and an OT to discuss a 'feeding plan'. We'll need to coordinate tube feedings with oral exercises, so that there is an eventual removal of the tube, if at all possible. Surgery is just one step in this process, but there is hope and we're aiming high.
Henry will be fitted for leg braces the day before his surgery. He'll probably have the braces, his tube and the final fitting of his wheelchair before the end of the year.
It's almost overwhelming. Almost. One thing at a time. Distractions from life, and the other children - keep my head from obsessing and ruminating on the ins and outs of Henry's issues. Lewis is nearly crawling, Anastasia starts basketball - the quad team, and Zane want to explore Homeschooling options. They'll keep me busy!
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