We're home...nearly settled!

Finally. Henry slept. He woke only once. The last week has been very difficult for him. He seems to be settled, now. He's becoming accustomed to his G-tube. He is still struggling a little, but is managing.

His feeding schedule is hard for me to get used to. He is free from the pump for only 6 hours a day. It's hard to be patient. It's difficult to be diligent, and consistent. I feel like I'm always twenty minutes late getting his next bolus ready, or getting his medications. But, we're getting it. It's tough. Tougher than I could have guessed...