March is Cerebral Palsy Awareness Month

Sometimes, Henry cries for no apparent reason. After 4 days of trying to discover his source of pain or discomfort we are at a loss. Our arms are tired and weak from hold him during fits, and our spirits are worn thin.
Discouragement is the hardest feeling to manage, these days. It never seems to diminish. In this video, he is on a 'respite' from the real waling that he does, sometimes for 30 - 45 minutes. He can cry for entire days, with out a break.

I did not post this video, because I wanted advice. If there is something to try, please know that we have tried it. Nothing works. If you think it's his teeth, or he is having growing pains - please know that he is also medicated, with pain medication AND anti anxiety medication. We have been dealing with this sort of crying since he was about 9 months old.

CP Awareness Month

March is Cerebral Palsy Awareness Month;

Spastic Cerebral Palsy.

Spastic means 'stiff' - children diagnosed with spastic CP experience very tight muscle tone. Some are unable, even with Physical therapy, to relax their muscles. They require medication, and in some cases, surgery to sever muscles groups to help prevent damage to bones. 

Some children with CP also suffer with low muscle tone. An inability to support sitting, or holding up their heads.

Henry has Spastic CP. It effects all four of his limbs. He frequently goes ridged and is unable to relax. Putting him in his wheelchair, or in the car seat is sometimes painful... even with medication.