Mystery Crying

Since birth, Henry has had abnormal bouts of crying. The doctors didn't want to look at it, because "babies cry". It was the same with vomiting. He threw up, all the time. Not simple spitting up, but full emptying of his stomach. Sometimes, several times a day. We were constantly feeding him, trying to keep him nourished.

After the diagnosis of Henry's lazy epiglottis, and gtube surgery, the vomiting stopped! But the crying continues.

We have read pages and pages of  information on brain injuries trying to puzzle out the cause. His doctors have no clue or suggestion for treatment. We suspect it may be a neurological issue, but are unable to corroborate our suspicions.

We live with it. Sometimes gracefully, sometimes not.

Hopefully, someone will be able to tell us why. Hopefully it will be treatable.

Until then - at least we still have hope.

March is Cerebral Palsy Awareness Month

Sometimes, Henry cries for no apparent reason. After 4 days of trying to discover his source of pain or discomfort we are at a loss. Our arms are tired and weak from hold him during fits, and our spirits are worn thin.
Discouragement is the hardest feeling to manage, these days. It never seems to diminish. In this video, he is on a 'respite' from the real waling that he does, sometimes for 30 - 45 minutes. He can cry for entire days, with out a break.

I did not post this video, because I wanted advice. If there is something to try, please know that we have tried it. Nothing works. If you think it's his teeth, or he is having growing pains - please know that he is also medicated, with pain medication AND anti anxiety medication. We have been dealing with this sort of crying since he was about 9 months old.