Friday, March 9, 2012

CP Awareness Month - Gtube

March is Cerebral Palsy Awareness Month. 
Children with CP have issues with muscle tone. Including the muscles used for swallowing. Some children have reflux. Some children can't swallow properly. Some children are at risk for aspirating. Henry has all of these issues. Unpredictible muscle tone made swallowing very hard for Henry. Sometimes he swallowed fine. Sometimes he would choke, inhale food, gag and vomit. A small sound could trigger vomiting. His reflux triggered vomiting. So, on Christmas on 2010 Henry had a Gtube placed to help keep his weight up and to act as a stop gap while we strengthen his swallowing 'skills'... It took more than a year to recover from the surgery (normally 6weeks) and he is still having gastro issues. 
We suspect that the muscle tone issues are also affecting his intestines and stomach... He may require more surgery.

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