Thursday, December 30, 2010

We're home...nearly settled!

Finally. Henry slept. He woke only once. The last week has been very difficult for him. He seems to be settled, now. He's becoming accustomed to his G-tube. He is still struggling a little, but is managing.
His feeding schedule is hard for me to get used to. He is free from the pump for only 6 hours a day. It's hard to be patient. It's difficult to be diligent, and consistent. I feel like I'm always twenty minutes late getting his next bolus ready, or getting his medications. But, we're getting it. It's tough. Tougher than I could have guessed...


  1. I hope that Lew slept as well and you all got some rest. I wish I could be of help in this transition time. Love you all.

  2. Does he seem more soothed and satisfied after a bolus feeding?

  3. When there's gagging and retching, no. But when he tolerates it, he's fine. Right now he's playing and having a bolus. It's toward the end that he starts getting sick. Last night, he rested well because I gave him tylenol for his teeth. He has 4 of them coming in! His gums look like they might erupt!